Keeping it nice
There has been no blabbing for quite a while now. It is actually over 2 years since my last blab. Not because things have gone particularly pear-shaped for us here. We are fortunate to...
Tagged: Cortical Vision Impairment
Alice Springs
There has been no time for blabbing this year, we’ve had our hands full. We did manage to escape to the Outback for a bit though, so I thought it might be worth an...
Oh Canadia
We took a trip to Canada recently. It was pretty great. Of all the things that could have gone wrong in three weeks away (and there were many) nothing actually did. We had a...
Gramming it up
I recently started up an Instagram account for Frankie – some of you will have been roped in already. I guess I feel I should follow this little development up with a bit of...
Frankie Vibes
So, life with Frankie now. It’s been 9 months since Let’s Be Frank and over 18 months since Frankie came home from hospital after he sustained his brain injury. Thankfully he’s remained seizure free...
The long and the short of it..
Frankie was diagnosed with Angelman Syndrome (AS) when he was 12 months old. Up until then his first year had been a bit “mad”…so to speak. He had trouble feeding and was a very...